Ep.18 – Building a Support System

Ep.18 – Building a Support System

Relevant Episode Links

Puzzle Board

Main Topic(s)
  • Why does this matter? Sometimes you need:
    • a break
    • to vent
    • to have fun/be distracted
    • an objective opinion
    • comfort
    • a cheerleader
  • How to start building your support system
    • Can be difficult, especially if you prefer to be in control
    • Hard to build once you’re in adversity, try to get it in place before things get sour
    • A support system is not just people
  • Embrace Interests that help you grow and develop
    • Art
    • Dance
    • Reading
    • Puzzles
    • Prayer/Faith
    • Knitting
    • Video/Board Games
    • Make sure to find a healthy balance and don’t let interests/hobbies become obsessions or ways to avoid problems
  • Exercise/Physical Activity
    • Endorphins!
    • Gym or at-home workouts
    • Team sports
    • Yoga
    • Studio Classes
    • LOTS of options
  • Get Away
    • Hike
    • Day Trip
    • Overnight
    • Any simple change of scenery
  • Find Your Quiet Space
    • At home
    • A park
    • Special coffee shop
    • Book Store
    • Go there often when things are good and bad
    • You should be able to use this space to rest, contemplate and rejuvenate
  • PEOPLE
    • Family & Friends
      • Know what you want/need
      • ASK for what you want/need
      • It is OK to reconnect with people you’ve fallen out of touch with
      • It is OK to cut out negative people who don’t support you
    • Support Groups & Therapists
      • Finding others who understand you/your situation is important
      • Nothing wrong with seeking a professional to be part of your support system

 

Listener Question/Community Connection
  •  Further Shaun EOE Discussion
    • High-dose antacids & re-scope
    • Oral steroid treatment
    • Elimination diet options

 

 

 

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Ep.17 – Leaving the House with Food Allergies

Ep.17 – Leaving the House with Food Allergies

 

Relevant Episode Links

Epi-Pen Carrying Case

Full Med Bag

Large Lunchbox

YumBox Leakproof Lunch Box

Monkey Business Allergy Bracelets (What we use for Shaun)

AllerMates Allergy Bracelets

FARE – Celiac v. Wheat Allergy

Celiac.org

 

 

Main Topic(s)
Leaving the House with Food Allergies
  • So Much Involved
  • Always take the Meds
  • What’s in the Tiny Backpack
  • Allergy/Medical Alert Bracelet
  • Food

 

 

Listener Question/Community Connection

Listener Question from Katie – “What’s the difference between Celiac Disease and a Wheat Allergy?”

 

 

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Ep.16 – Not Letting Fear Rule

Ep.16 – Not Letting Fear Rule

Happy New Year!!

 

 

Welcome back to episode 16 of the Art of Allergies podcast! We hope everyone has had a great holiday break and some time to rest and recharge with your families 🙂

In this episode, we discuss fear and how it impacts food allergy life.

Fear can be a valuable tool to aid in decision making, but we don’t want to allow it to paralyze us. We share a few of our experiences and some tools that we use for dealing with fear and successfully navigating risky scenarios in daily life.

 

Cheers!

 

 

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Ep.15 – Doctor’s Appointments

Ep.15 – Doctor’s Appointments

* * NOTICE ** We will be taking a brief holiday break, so this is the last episode for this year. We will be returning on January 1st, 2020.

 

Welcome back to episode 15! This one is all about doctor’s appointments (and there will be many). You can check out our previous blog post about the topic here, but in this episode, we go into a bit more detail, along with some helpful tips and tricks for how we prioritize our time and make effective use of every single appointment that we have for Shaun.

 

 

Main Topic(s)
  • Verify ALL aspects of your appointment
    • Date & Time
    • Location (many practices have multiple offices)
    • Which Doctor(s) you’re seeing
    • Nature of the appointment (e.g. well-visit, skin test, food challenge, etc.)
  • Show up to the appointment prepared
    • The Binder
    • Our 1-pager with repetitive questions/answers
    • Bring written questions/concerns for your doctor
    • If the appointment is for your child, bring kid things
      • Books
      • Toys
      • Favorite blanket/stuffed animal
  • Take notes and keep copies
    • Any Change(s) to your care plan
    • Answers to your questions
    • Prep requirements for future testing or appointments
    • Red-flag symptoms and what response you should take
    • Medication adjustment(s)

 

 

Community Connection
  • Reverse Advent Calendar
  • Listener Question

 

 

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Ep.14 – Auto-Injectors and Emergency Departments

Ep.14 – Auto-Injectors and Emergency Departments

Welcome back to episode 14! We have a bit of a different format this week, in that we don’t have as curated an episode as we normally do. This is because we felt strongly that we wanted to talk about the reaction that Shaun had last week, and our experience using the auto-injector and our trip to the emergency department. We hope you can get something out of it, and maybe it can help you if/when you encounter a similar experience in your own allergy journey.

 

Community Connection

Listener question!

 

 

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